I have had several patients recently, diagnosed with Multi-System Atrophy (MSA). When discussing treatment options for speech and swallowing, the approach of one patient,is to do everything possible to preserve function. Another patient asks: "is it worth it?" As I attempt to put together meaningful treatment plans for these patients, I also learn from them. I try to listen to what their individual goals are, and guide them, best I can, to understand and weigh options such as accepting or declining feeding tube placement, and obtaining assistive speech devices.
I have invited one of my patient's and his wife to be interviewed regarding their experience with the disease. I will publish that interview next month, in March.
Multiple System Atrophy or MSA is a devastating neurological disorder that attacks people in their prime of life.The exact cause is not known, there is no cure.More research and awareness is needed around the world.
Multiple System Atrophy is an incurable degenerative brain disease that combines many symptoms of Parkinson’s Disease and ALS, with cerebellar ataxia and autonomic failure. Other names for Multiple System Atrophy are Shy-Drager Syndrome, sporadicolivopontocerebellar atrophy(OPCA), Striatonigral Degeneration.
MSA is often misdiagnosed as Parkinson's Disease until other symptoms emerge. Some of the symptoms are problems with balance and coordination, slurred speech,and difficulty swallowing. Symptoms also may include fainting or light headedness due to rapid blood pressure drops, urinary incontinence, loud snoring, sleep disorders, and difficulty breathing.
The average life expectancy after onset of symptoms is less than 10 years.
To sign a petition in support of research and increased public awareness, go to:
http://www.msaawareness.org/
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