MSA (Multiple System Atrophy) is one of those diseases, categorized under “rare diseases.” Despite its rarity, I have had 3 patients in the last year with this diagnosis. As a therapist, it has saddened me to see vibrant people struggle with a decline in function, which usually includes speech and swallowing, and for which treatment can offer modest improvement.
Worldwide MSA action day is today, the 3rd of October, all day long.
To raise awareness and work towards a cure, you are asked to light a candle at 20:00 hrs / 8:00 p.m. for one hour local time
When we light the candle, we say a prayer. We leave the candle behind burning as a testament to our prayer for another person (either alive or deceased). It serves as a reminder to all who look upon it to pray for those that are in need.
The population of the Earth is estimated to be 6,952,785,870 (as of August 1,
2011). This means that statistically we can estimate that worldwide 347.635*
people may be affected with MSA at this time. (*5 cases per 100,000)
We want to have a candle lit for everyone that may be affected with MSA and for all those loved ones who have lost their battle in the past.
You can light your candle at home alone, or with friends and family, or during
your local activity that is planned for World MSA Day. As candles are lit around the globe, a virtual 24-hour wave of light will be created as it moves from time zone to time zone.
To learn more:
http://www.world-msa-day.org/World-MSA-Day/HOME.html
Worldwide MSA action day is today, the 3rd of October, all day long.
To raise awareness and work towards a cure, you are asked to light a candle at 20:00 hrs / 8:00 p.m. for one hour local time
When we light the candle, we say a prayer. We leave the candle behind burning as a testament to our prayer for another person (either alive or deceased). It serves as a reminder to all who look upon it to pray for those that are in need.
The population of the Earth is estimated to be 6,952,785,870 (as of August 1,
2011). This means that statistically we can estimate that worldwide 347.635*
people may be affected with MSA at this time. (*5 cases per 100,000)
We want to have a candle lit for everyone that may be affected with MSA and for all those loved ones who have lost their battle in the past.
You can light your candle at home alone, or with friends and family, or during
your local activity that is planned for World MSA Day. As candles are lit around the globe, a virtual 24-hour wave of light will be created as it moves from time zone to time zone.
To learn more:
http://www.world-msa-day.org/World-MSA-Day/HOME.html
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